Once Baby D was born, Jay’s health deteriorated. Physical ailments led to mental issues. By the time Baby D was four, Jay was in a wheelchair and not always lucid.
As if he had only been holding on to complete his purpose in life—a grandson.
My mother-in-law, Sunny, was younger than Jay. Even so, she had trouble caring for Jay at home. During one of our visits to Hawaii, when I picked Jay up off the floor for the third time and put him back in bed, I told Andy his family needed to think about putting Jay in an assisted living facility.
“Your Dad isn’t that big, but your mom isn’t getting any younger. How is she going to manage without us?”
“I don’t know. No one wants to talk about it.”
Andy’s older sister is a doctor. Her specialty is geriatrics. Yet when I pointed out that Jay was a lot for her mother to cope with and suggested moving him to a home, Betty burst into tears and said, “Oh, Autumn, no!”
Sunny refused to even consider the idea. “Too expensive,” she said.
“Not if you sell the rental house,” I argued.
“There’s too many taxes,” Sunny said.
I steeled myself and asked, “What if you sell both houses and move near us? We could help and your sister is nearby.”
“No, no, I will stay here and be fine.”
Sunny, of course, wasn’t fine. She had her own medical issues cropping up now that she was in her sixties. When she needed various surgeries, one of her kids had to fly 3-5,000 miles to take care of Jay. Same thing when Popo, Sunny’s mother, had a stroke, and Sunny needed to care for Popo.
Guess which of the three children always had to fly out in an emergency?
My husband. We were the closest, with the most flights from LA to Hawaii. Andy had the most stable job, with plenty of PTO. But mainly, Andy had me—the stay-at-home-mom who could, of course, always put her writing on hold to manage the one kid and everything else for a few weeks. His sister, married to another doctor and with two kids, was either on call or her husband was on call. Andy’s brother had a new baby (and then another new baby) while he and his wife worked in tech in San Jose.
For years, all of Andy’s vacation time went to trips to Hawaii. All our extra money went for his flights to Hawaii.
When he ran out of vacation, Andy took some Paid Family Leave (thank you, California!). It wasn’t his full salary, but we got by.
I got bitter. Single parenting The Boy Who Wouldn’t Nap, especially during Spring Break and Summer vacation, was mentally and physically exhausting. When, inevitably, I got injured while trying to walk 2 big dogs and chase Baby D on his bike, I had to keep going. I powered through baths on bloody knees, walks with back spasms, and several delightful noroviruses.
Plus, Baby D hated my cooking and missed his dad. He had no compunctions about telling me this hourly.
In vain did I remind my husband that he was now the unofficial Chinese-American Patriarch. “Just take charge! Put your foot down! Tell your mom she needs to move or move your dad into assisted living!”
Andy could not. He had spent too long deferring to the wishes to his parents. Which was, as always, hard for me to wrap my head around. Not once have my sibs and I shied away from battle with any parental unit—especially not when we thought our cause was just. (As it always was!)
But Andy would not argue with his mother, not even when Jay’s physical abilities deteriorated to the point where he needed a feeding tube. Despite Jay’s earlier instructions NOT to prolong his life, Sunny had one inserted. By then, Jay could no longer speak to protest.
I ranted to Andy about how wrong it was. Jay was stubborn and opinionated. He enjoyed laying down the law. Maybe, because of our skirmishes over everything from cheesecake to screwdrivers, I was the only one who could see how much Jay would have hated being overruled. Or maybe I empathized because I was the only family member who could fully relate to the old man’s bossy, judgmental personality.
Andy agreed that his father would not want to be kept alive, but had no idea where Jay’s old instructions were. Even if he had had them, he would never have fought his mother over his father’s care.
So I ranted to my Judgmental Genius Doctor Sister, an oncologist who deals with hospice issues daily.
“I know,” she sighed. “There are so many times when I have to explain to the grandchildren who can’t bear to let grandma go that there are things worse than death. Sometimes, you have to take them into the room and let them see the suffering. But to go against someone’s explicit wishes when they are no longer in their right mind? If only he’d been in assisted living! Or the hospital! They would have already had his wishes on file.”
“I know,” I ground out.
“Disregarding them is monstrous. Listen, if I ever lose my mind to dementia, you take me out, okay? I’ll be sure and leave you some morphine or a shot of potassium to make it quick.”
“I will,” I promised. “And you’ll do the same?”
“Don’t worry. If it comes down to it, I’ll kill all y’all.”
More comforting words were never spoken.